***Trigger warning***
I’m going to talk frankly about chronic mental illness, as
someone who has intimate knowledge.
My husband had life-long, debilitating obsessive compulsive
disorder, exacerbated by depression. I walked his journey with him for 43
years, as he fought to focus on all the many and wonderful positive things in
his life, and to not spiral down into the over-focusing that is OCD.
Depression is not being sad. OCD is not counting your steps,
or straightening pictures. Chronic depression includes being overwhelmed to the
point of inertia, sometimes by the most simple things of daily life. OCD
involves over-thinking, which can lead to getting stuck in a loop that repeats
over and over. OCD is not a punchline, nor is it a plot generator for a
situation comedy or a movie. It has always infuriated me that a show like Monk would be so well-received, with
their running jokes about the title character’s tics and rituals. I cannot imagine
a comedy based on the cute trials and tribulations of a person with cancer or
type-1 diabetes, but it was apparently OK to take a light-hearted approach to
chronic mental illness. There is nothing light-hearted about chronic mental
illness.
Over the years, Mark used a combination of psychotherapy and
medication to manage his symptoms, and there were some times that were very
good. But there were some times that were not good. Times when the depression
would become the focus and he would start to spiral downward. I could usually
spot the beginnings of a spiral, and we’d work through it with the strategies
he had learned to use.
The last year was especially difficult, dealing with such
disparate things as the current dreadful administration and the decline and
death of his father. His spirals were more frequent but recovery was also more
swift. A couple of weeks ago, Friday was a very bad day. He considered going to
St Vincent’s but after talking it out with me he decided against it, and he
accompanied me to the drumline competition on Saturday, helping move the kids
on and off the floor and hanging out with me in the directors’ room. We went
out into the neighborhood and walked for about a mile and ½ and it was a very
nice walk - positive and pleasant. Sunday was a good day, getting a few things
done around the house, planning the next week, and evening church. At church,
we were the greeters and Mark was the head usher. We collected the offering and
then he decided to wait to go put it away, because he was appreciating the
songs and what our guest speaker had to say and wanted to participate fully.
When we got home, I checked in with him and he said things were much better –
again, a fairly quick recovery. Monday morning was a good morning, with Mark
getting up right away, taking care of our cats, fixing my oatmeal, and doing
his exercise bike shakeout and stretches. He had plans to hike at Tryon, to
help my dad on Tuesday, a list of things on which he was making good progress.
And then something happened - to get him stuck in a loop. He took his medicine
– all of it. I could not find a triggering incident – there was no email, no
phone call, no text, no note. My best guess is that he started to over-focus on
something and took his medicine to make it better, and then got stuck in taking
it over and over, questioning whether he had taken enough, until he became
disoriented.
Here is what I know for certain – he did not take his
medicine for the purpose of dying that day. If so, he would have emptied the
medicine cabinet. He would have taken my medicine, and the 500-tab bottle of
Tylenol, and the bottle of aspirin all people over 60 are supposed to take, and
everything else. He only took his own medicine, which he used to help with his
symptoms. I know he did not plan to die that day. Mark was incapable of being
duplicitous – he truly WAS having a good morning, not just pretending to have a
good morning. Those of us who know him know that he could not have planned and
hidden a plan – he was incredibly transparent, and self-control was never
something he did well. And he did not undergo a sudden personality change –
that’s the stuff bad TV and movies are made of. And yet, he died. From an
overdose of the medications that, for years, had helped him manage the awful
combination of depression and OCD. Nothing about the day pointed to an intent
to die. When Mark had a meltdown, it was messy. Monday was not a messy day, in
any way. And when he had intrusive thoughts, he could not keep them to himself.
There would have been a call, or a text, or something. He did not plan to die
that day. And yet, he died.
Mark fought depression his entire life. Childhood school
records show indications that OCD came along early as well. He fought long and
hard and well. The OCD made it so that he could not ignore the symptoms of
depression. The depression made it difficult to manage the over-thinking of
OCD. Together, the two diseases were a formidable opponent, and he fought long
and hard and well. He trusted deeply in the love of God and the grace of Jesus
and he believed God’s people have a moral imperative to work diligently to help
right wrongs, here and far away. And his life reflected that belief. When he
was not in a downward spiral, he was helping others. Those who know him, know
this as the biggest defining factor of his life. Not the OCD, and not the
depression. Helping others. Helping. Others.
It is imperative that the rest of us need to continue to
shed light on mental illness, so that those who are affected are not afraid to
get help (we would NEVER suggest someone needing dialysis should just “try
harder”). To not make fun of those who are affected, but to be there to support
(we would NEVER make fun of someone fighting cancer). To never let any aspect
of mental illness become a punchline (we would NEVER create a comedy around the
trials of someone with chronic pain). To help people understand that mental
illness does not mean violence. To help people understand that mental illness
does not mean weakness. To not look at evil and instead call it mental illness.
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